Educational Resource: New Horizons in the Management of ADA-SCID
New Horizons in the Management of ADA-SCID is a free educational resource for healthcare professionals managing patients with this rare disease. The resource features:
- Webcasts on the diagnosis and management (including gene therapy) of ADA-SCID
- Video interviews with clinicians, nurses, as well as a parent about her child’s journey from diagnosis to treatment
- Case studies on clinical presentation and newborn screening
- Specialist directory: map with locations of specialists around the world
- Summaries of the latest published articles about the disease
Launch Resource
Resource Editorial Board
· Dr Robbert Bredius, Leiden University Medical Centre, The Netherlands.
· Dr Fabio Candotti, Lausanne University Hospital, Lausanne, Switzerland
· Dr Andrew Gennery, Newcastle University and Great North Children’s Hospital, Newcastle upon Tyne, UK